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Leadership Opportunity – PKD-Free Alliance

Location: Remote

Reports To: Founder

About PKD-Free Alliance

PKD-Free Alliance is a fast-growing nonprofit committed to ending Polycystic Kidney Disease (PKD). We support families, fund critical genetic testing, and collaborate with the medical community to inspire science-driven solutions. We are seeking a dynamic, self-motivated leader to help propel our mission to new heights.

Your Role

This is an incredible opportunity for a passionate nonprofit professional to thrive in an entrepreneurial environment. You’ll work directly with our visionary founder, Richard Kellner, to shape the future of PKD-Free Alliance. Together, we aim to give countless families the gift of a life free from PKD’s burden.

You’ll guide growth, foster partnerships, oversee operations, and lead outreach initiatives. Through your leadership, PKD-Free will remain at the forefront of creative, science-based approaches to combating this life-altering disease.

Key Responsibilities

1. Operations, Grants & Partnerships

· Develop strategies to engage influencers, attract sponsorships, and expand networks.

· Build and nurture partnerships with medical centers and stakeholders.

· Enhance and oversee donor/stakeholder engagement through CRM tools.

· Review and approve grant applications, supporting recipients directly.

· Lead targeted email campaigns to PKD Centers of Excellence.

· Represent PKD-Free at industry events, open houses, and conferences.

· Create impactful educational materials to expand awareness.

· Recruit, manage, and inspire a strong volunteer network.

2. Social Media & Public Relations

· Strengthen and expand PKD-Free’s social media presence.

· Engage with PKD-related online communities to build visibility.

· Monitor and respond to social media inquiries thoughtfully.

· Collaborate with PR teams to refine strategy, messaging, and content.

· Represent the organization at conferences and public forums.

Who You Are

Mission-Driven: You have a deep connection to PKD—personal or professional—and are passionate about supporting families, advancing genetic research, and driving impactful change within the PKD community.

Experienced Leader: You bring proven expertise in nonprofit leadership, including grants management, partnership building, and advocacy. You thrive in data-driven environments and understand the nuances of genetic research and its impact.

Self-Starter & Communicator: You’re independent, proactive, and thrive on solving challenges. You also excel in collaborating with diverse stakeholders—from researchers to families—and are skilled at communicating a compelling vision to drive engagement and impact.

Compensation & Benefits

· Salary: $80,000+ per annum, commensurate with experience.

· Benefits: Vacation, paid sick leave, health insurance, retirement plan, and professional development opportunities. Most major holidays observed.

Join us in making a meaningful, life-changing impact for families affected by PKD. Together, we can shape a healthier, PKD-free future. Apply now!

PKD-Free Alliance is an Equal Opportunity Employer

We are committed to providing equal employment opportunities without regard to race, color, religion, sex (including pregnancy, childbirth and related medical conditions), national origin, age, disability or genetic information. This policy applies to all terms and conditions of employment.

PKD-Free Alliance also complies with applicable state and local laws governing nondiscrimination in employment. This policy extends to all employees and applicants for employment and includes aspects related to recruiting, hiring, training, job assignments, promotions, benefits, pay rates and any other personnel action taken against the employee/applicant.

As a leader at PKD-Free Alliance, you will have the unique opportunity to drive meaningful change and make a difference in the lives of those affected by PKD. Your role will be instrumental in shaping the future of our organization and ultimately, helping to find a cure for this devastating disease. Join our team today and become part of an inspiring movement towards a healthier, PKD-free world. So whether you have personal experience with PKD or are simply passionate about making a difference in the nonprofit sector, we encourage you to apply for this exciting leadership opportunity at PKD-Free Alliance. Together, we can create a brighter future for families affected by PKD! So don’t hesitate – apply now and join us on our mission to end Polycystic Kidney Disease once and for all. We look forward to receiving your application and welcoming you into our PKD-Free Alliance family!

Additional Resources

Interested in learning more about Polycystic Kidney Disease or how you can get involved with PKD-Free Alliance? Check out our website and follow us on social media. Together, we can make a difference in the fight against PKD. Join us today! So don’t wait – apply now and be a part of this life-changing movement. Thank you for considering joining the PKD-Free Alliance team! Let’s work together to end PKD and create a brighter future for families everywhere. Together, we are strong and can achieve anything. Join us on our mission today!

Additionally, as a member of the PKD-Free Alliance team, you will have access to ongoing professional development opportunities and resources to enhance your skills and knowledge in nonprofit leadership

· Twitter: @pkdfreealliance
· Instagram: @pkdfreealliance
· Facebook: PKD-Free Alliance
· LinkedIn: linkedin.com/company/pkd-free-alliance
· Website: PKDFree.org

Join Us

Join us in making a meaningful, life-changing impact for families affected by PKD. Together, we can shape a healthier, PKD-free future. As a leader who embraces learning and innovation, you’ll be key in ensuring PKD-Free Alliance consistently evolves to deliver greater hope and generational health to all those we serve.

Apply now and be part of a movement that changes lives.

Send resume and cover letter and writing sample to:

F. Jay Hall
Executive Recruiter
ExecSearches.com
PKDFreeCIOOSearch@gmail.com
Link to Job Description

Let’s work together to end PKD and create a brighter future for families everywhere. Join us on our mission today! So don’t hesitate – apply now and be a part of this life-changing movement! Thank you for considering joining the PKD-Free Alliance team! Together, we can make a difference in the fight against PKD. Let’s #EndPKDTogether! Stay connected with us and stay updated on how you can join the fight against PKD by following us on social media and signing up for our newsletter.

Let’s end Polycystic Kidney Disease together.